|
The Butterfly project
Most women who have a multiple pregnancy (twins, triplets or more) do not have complications, but sadly, every day in the UK at least one baby from a multiple pregnancy dies. We wanted to better understand what it felt like to be a parent who has had to face such a difficult challenge. We spoke to parents who had lost at least one baby, and had a least one surviving baby from a multiple pregnancy, and we spoke to midwives, doctors and nurses to hear about their experiences. If you are a parent affected by the Butterfly project we would like to hear from you in this brief survey (click here) |
|
We conducted this research over more than 10 years, and worked with more than 50 families to understand their experiences. We are indebted to their support. This led to the creation of the Butterfly Project which is hosted on a separate website - click the photo to follow to www.neonatalbutterflyproject.org.
This website contains films made with parents and staff. The film clips are organised to demonstrate the key themes that emerged in our research. There are also film clips that align to the guidelines we produced. The website has other resources including written guidelines that have been translated into several different languages including Spanish, Portuguese, Italian, Romanian, Russian, German, French, Arabic, Swedish and Japanese. We are adding more languages. This website is free to access.
This website contains films made with parents and staff. The film clips are organised to demonstrate the key themes that emerged in our research. There are also film clips that align to the guidelines we produced. The website has other resources including written guidelines that have been translated into several different languages including Spanish, Portuguese, Italian, Romanian, Russian, German, French, Arabic, Swedish and Japanese. We are adding more languages. This website is free to access.
NEW for 2021!
Our Butterfly project website has been visited 10,000's of times from around the world. We are now collaborating with the Skye High Foundation established my Millie Cann in memory of her twin daughter Skye who died shortly after birth. The Skye High Foundation provide Butterfly cot cards and other resources for hospitals. You can contact them via their website.
Our Butterfly project website has been visited 10,000's of times from around the world. We are now collaborating with the Skye High Foundation established my Millie Cann in memory of her twin daughter Skye who died shortly after birth. The Skye High Foundation provide Butterfly cot cards and other resources for hospitals. You can contact them via their website.
|
We have now partnered with Newcastle University, the Skye High Foundation, and Newcastle Hospitals NHS Trust, to create a unique online learning course endorsed by more than 20 advocacy organisations worldwide including Sands, Bliss, EFCNI, TAPS, INHA and many more.
This is a 4-hour course, that runs continuously and learners can join at anytime. Learners have the opportunity to interact with their peers from around the world. In the first month since the course was released, we have had >250 learners from more than 50 countries join the course. Learners who upgrade can stay in touch and join in conversations as they develop. |
|
The course is CME/CPD accredited by the Royal College of Nursing, The Royal College of Paediatrics and Child Heath, and the Institute of Health Visiting. Those who would like to obtain a certificate will need to register for the upgrade and complete the course in full. This costs just £32.00 for 4 hours of high quality learning. Any profits from the upgrade costs are used to support our Skye High Foundation charity and provide resource packs and Butterfly cot cards for hospitals.
You can access the course here. You can register on Future Learn and view the course for free.
You can access the course here. You can register on Future Learn and view the course for free.