It's the little things that count
Welcome to my website!
This website is used to direct those who are interested to my various projects in the areas of nutrition, loss from a multiple pregnancy (Butterfly project), lactation after loss and other aspects of palliative care. I am passionate about helping health professionals hear the parent voice through stories and film work focussing on baby loss, palliative care and the trauma associated with NICU admission and sick babies.
There is a separate website dedicated to the Butterfly Project as well as a linked YouTube channel with films made with parents, and recorded lectures on nutrition and baby loss. I have recently set up on Substack which is a platform for writing articles and stories, sharing short videos and other media which is linked with my social media profiles on Instagram, LinkedIn and Twitter/X. You can subscribe for free to listen to parent stories of love, loss and short lives, and read my posts on nutrition.
This website is used to direct those who are interested to my various projects in the areas of nutrition, loss from a multiple pregnancy (Butterfly project), lactation after loss and other aspects of palliative care. I am passionate about helping health professionals hear the parent voice through stories and film work focussing on baby loss, palliative care and the trauma associated with NICU admission and sick babies.
There is a separate website dedicated to the Butterfly Project as well as a linked YouTube channel with films made with parents, and recorded lectures on nutrition and baby loss. I have recently set up on Substack which is a platform for writing articles and stories, sharing short videos and other media which is linked with my social media profiles on Instagram, LinkedIn and Twitter/X. You can subscribe for free to listen to parent stories of love, loss and short lives, and read my posts on nutrition.
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About
I have over 30 years clinical experience in the NICU, and have been involved in multiple areas of neonatal research especially nutrition and baby loss. I was inspired to become a neonatologist after working with the late Dr Edmund Hey in 1992. I am proud to follow a long line of neonatal and paediatric academics stretching back over 100 years in Newcastle upon Tyne, UK - you can read the history of the academic and a brief overview of the development of clinical services here. Research My doctoral research (1997-1999) was on 'protein requirements in preterm infants' and since then I have led, and collaborated on, several large multi-centre RCTs as well as supporting in-house studies PhDs, MDs and Masters, focussed on nutrition, gut function and the microbiome. I have also coordinated a series of qualitative studies and projects with bereaved parents, especially those suffering the loss of a baby in a multiple pregnancy. I have worked with many inspiring collaborators and colleagues, and worked closely with Newcastle University colleagues Judith Rankin OBE, Janet Berrington and Chris Stewart, but there are 100s more. Good research is always team work. A full list of my publications and grants are available on ORCID and you can view citations, H-index and other metrics on scholar. Subscribe to parent stories, posts and nutrition research by scanning the QR CODE or following here. |
Organisations I work with and support
I have worked as associate editor for Pediatric Research and Journal of Paediatric Gastroenterology & Nutrition, reviewed for 100s journals, conferences and grant funding bodies, help edit Infant Journal, and served on DMEC, TSCs and project teams for multiple NIHR / MRC funded studies. I have been an invited lecturer in more than 30 countries, and worked with multiple professional organisations to help synthesise evidence, write guidelines and teach, including ESPGHAN, WHO, ESPR/ESN, BAPM, ALSEPNEO, NIHR and CEPAS. I have helped lead educational projects creating freely-available online learning courses in the areas of nutrition and baby loss. I provide pro bono support and work closely with many advocacy organisations, as well as serving as medical advisor.
1o recent papers...
Gupta S., et al. A clinical practice guide to transform care and save newborn lives with kangaroo mother care (2026) The Lancet, 407 (10523), pp. 7 - 9 DOI: 10.1016/S0140-6736(25)02173-7
Meiliana M., et al. Standardised reporting framework for nutrition and growth in preterm nutrition studies: the NutriGrow Delphi study (2026) Pediatric Research DOI: 10.1038/s41390-026-05082-5
Embleton N.D., et al. Probiotic supplementation – does it prevent or cause neonatal sepsis? (2025) Seminars in Fetal and Neonatal Medicine, 30 (4), art. no. 101668 DOI: 10.1016/j.siny.2025.101668
Leake N., et al. Facilitators and barriers to the practice of neonatal family integrated care from the perspective of healthcare professionals: a systematic review (2025) Archives of Disease in Childhood: Fetal and Neonatal Edition, 110 (6), pp. 549 - 555 DOI: 10.1136/archdischild-2024-327770
Chapman J.A., et al. Clostridia from preterm infants metabolize human milk oligosaccharides to suppress pathobionts and modulate intestinal function in organoids (2026) Nature Microbiology, 11 (4), pp. 940 - 959 DOI: 10.1038/s41564-026-02297-4
Fenton T.R., et al. Expert recommendations for preterm neonates’ growth goals: Considerations for clinicians (2026) Seminars in Perinatology, 50 (4), art. no. 152228 DOI: 10.1016/j.semperi.2026.152228
Embleton N.D., et al. Parenteral nutrition for preterm infants: benefits and risks in 2025 (2025) Seminars in Fetal and Neonatal Medicine, 30 (2), art. no. 101635 DOI: 10.1016/j.siny.2025.101635
Ahearn-Ford S., et al. Spatiotemporal development of late and moderate preterm infant gut and oral microbiomes and impact of gestational age on early colonization (2025) mSystems, 10 (12) DOI: 10.1128/msystems.00667-25
Andrew M.J., et al. Trial protocol: DOLFIN trial: Developmental Outcomes of Long-term Feed Supplementation in Neonates—A UK multicentre, blinded, stratified, randomised controlled trial (2025) Trials, 26 (1), art. no. 592 DOI: 10.1186/s13063-025-09253-3
Klingenberg C.,et al. International survey on enteral nutrition, supplementation and probiotic practices for preterm infants (2026) Archives of Disease in Childhood: Fetal and Neonatal Edition, art. no. fetalneonatal-2025-329670 DOI: 10.1136/archdischild-2025-329670
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