Population-based study of two year outcomes in very preterm babies - a regional cohort in the North East of England

Thank you for taking part in our research. I am Dr Otilia Osmulikevici and work as a neonatal doctor at the James Cook University Hospital. I am also a PhD researcher at Newcastle University. I hope our research study will help improve care for babies and their families in the future.

If your baby ​has been seen in clinic and you want to complete the questionnaire, please click here

If your baby ​has not been seen in clinic, and you want to complete the questionnaires, please click here

If you completed the questionnaire(s) and  would like to ​tell us anything about the study, please click here

Thank you.
Dr Otilia Osmulikevici

Summary

Advances in neonatal medicine mean that the survival of premature babies has increased dramatically over the last 20 years, and over half of all babies born more than 16 weeks early now survive. Whilst most go on to lead happy and healthy lives some have longer term problems, such as physical difficulties, slower learning, or medical problems.

Our study will find out how babies born more than 12 weeks early in the North East of England are doing. This information is important for babies and families, and we hope it may help nurses and doctors to improve care.

We are collecting information about any disability, general health, any problems with breathing, and the baby’s behaviour, and also about the care the baby received whilst in hospital, and during follow up visits to hospital, using medical notes.